
The Dreaded EEG
Some things in life you can never really get used to. I remember when Aidan was about 2 and I had to learn how to put a G tube in him. For those of you that do not know what a G tube is, it is a feeding tube that is inserted through the nose and down the throat and into the stomach. It has to be precise or it can end up in the lungs. This tube would get taped to his face for a few days and he would get hooked up to a machine which would pump food into him. Typically overnight


Friendship
I have been pretty lucky my whole life and have always felt blessed that no matter what adversity came my way, some good would come about superseding the hard time and blossoming into something better. Maybe a missed business opportunity that opened the door for a better, more lucrative one. Maybe a missed connection that allowed for a better connection. Where friends have been concerned, I too were always very lucky, having some great friends that were always there for me. N


Our First Donation
Our first check is going out today to Blooming With Autism. This is a great charity which gives grants directly to families to help cover things such as assisted learning devices, iPads, weighted blankets, and most importantly, therapy. We are delighted to be able to say we are helping raise money for them. Hopefully each month the check will grow. Remember we are donating $3.00 per shirt sold to Blooming with Autism. We are offering a special for Mothers Day. We are produci


19 Years And Counting
Any couple that has a child who is ill will have added stress to their relationship. I'm not talking about a child who has a cold or the flu but one with life threatening or long term illnesses. The focus of every conversation, every family get together, every phone call typically ends up being about the illness and what is or isn't being done. In most cases, other children in the house get somewhat neglected as their accomplishments and achievements don't seem as important a


Take Our Money Please: Part 2
We are very pleased to say that we have found a great organization to be working with and to donate money to. It is called Blooming for Autism. They are based out of Florida. Blooming with Autism gives out Grants up to $2000 directly to families to help pay for much needed therapy and learning tools which can make a difference in a child with Autism. When Aidan was diagnosed with Autism, he was immediately started in therapy. He had all the normal symptoms of Autism. Spinning


Take Our Money Please: Part 1
When we decided to set up a website to help promote Autism Awareness and hopefully raise some money we could donate to a worthy cause, we had no idea how difficult it could be to find an organization to give money to. Now if someone was telling me this, my first response would be, I don't understand, you just write a check and send it, whats the problem? Seems easy enough. But for us, its a bit more involved. it isn't so easy to get someone to take our money. We have wanted t


Be Careful What You Wish For
As with every rite of passage for kids growing up, especially boys, we tend to exercise what we feel is our right to speak our mind. More precisely our right to use words we don't get to usually use. We find situations and emotions to apply these words to, such as surprise, anger, sadness, and just the inclusion into every other sentence we can as it makes us feel older. As I am sure you have guessed, these words are typically curse words that we have been told are bad words


Sibling Day Today
I don't know who comes up with these odd holidays but guessing its hallmark as they have a lot of cards to sell. Growing up for me was somewhat interesting as i had 3 younger brothers and an older sister and to say we all got along back then, well, lets just say we didn't hang out together. As a matter of fact, we didn't like to share friends, toys, clothes, pretty much we all just did our own thing. As a matter of fact, I borrowed this from my sisters blog just to put things


It's OK To Feel Guilty
Anyone that knows me knows that I love my sons more than anything in the world. I would give my life without a seconds hesitation if it were to save one of them. The thought that any of them could be ill, could be bullied, made fun of, or could not have an amazing life is unthinkable. But the reality for me as well as almost every parent is that along with real life comes real problems. Kids do get picked on, kids do get sick, children do have disabilities and it doesn't matt


The Dreaded Button
Back in January we came home from dinner at the inlaws to find that Aidan lost his feeding tube. For those of you that do not know what this is, Aidan has a small tube called a button that was surgically implanted into his stomach. Its held in place by an inflated balloon filled with water. It allows us to give him medication and supplemental food as his body does not process calories the same way everyone else does. Most people and kids his age put on pounds and he puts on g